I have the results of my spinal tap {SP} … but I’m told they’re still somewhat inconclusive.
Because I’m “inbetween” doctors right now and didn’t have a doctor at home to order the SP, we were able to use the doctor at the company CJ works for. He ordered the SP for me and also gave me the results via phone. When he talked to me last week, he said everything came back normal, except one test where it was mildly suggestive of MS, but because there can be a lot of false-positives with this particular tests, doctors don’t put a lot of value on it.
Okay.
So that was last week. I got the report in the mail yesterday and read it for myself. This is what it says:
The patients CSF contains >5 well defined gamma restriction bands that are not
present in the patient’s corresponding serum sample. These bands
indicate abnormal synthesis of gammaglobulins in the central nervous
system. This finding is supportive evidence of multiple sclerosis, but should be
interpreted in conjunction with all clinical and laboratory data
pertaining to this patient.
Can anyone translate that for me? ;)
I’ve sent the report to the NY doc and to our neurologist friend, but haven’t heard back yet. I’m also going to send it to the Chicago doc that undiagnosed me and see what he thinks as well. As crazy as this procedure was for me, I’m really glad I had it done, as I’m prayerful it’ll give us some final answers!
I hope and pray that the experts you’ve got looking at you are able to give you some definitive answers! In the meantime, tell those gammaglobulins to be have themselves. (And why do I picture them looking like McDonald’s Fry Guys??) Love you & want you to be healthy!!
Yeah I don’t know, but “This finding is supportive evidence of multiple sclerosis…” sure sounds like you do in fact have MS! I sure hope one of these doctors can make sense of this test and get you on a plan of treatment that works!!!!! Praying…
I’m not sure what all this means, but I’m praying for you now! XOXO, cat
I just pulled my spinal tap records from 2006 and what they said on yours, must be standard language. Mine said, “The patient’s CSF contains 4 well defined gamma restriction bands that are not present in the patient’s corresponding serum sample. These bands indicate abnormal synthesis of gammaglobulins in the central nervous system. This finding is supportive evidence of multiple sclerosis, but should be interpreted in conjunction with all clinical and laboratory data pertaining to this patient. (It’s almost a copy and paste!)
in my experience, “supportive of” doesn’t necessarily mean it’s strong enough evidence for diagnosis on its own.
hoping for answers for you… i know how disquieting the waiting and wondering is!
hoping & praying for some peace of mind for you. ::hugs::
Not sure what I am thinking, as I am not sure what they were saying! Praying for some answers my friend.
Sending my LOVE and PRAYERS!!!!!! That medical lingo-jingo is sure confusing. Thank God for the expert medical professionals you have!!
I hope someone can tell you something! I’m sure you’re over the waiting game. I’ll be thinking of you!
Hoping you get some answers. Sending hugs and prayers your way! xoxo
Bless your heart! I have been thinking of you and hoping you would have answers soon! Love all your new pics of the girls from your trip! :)
praying for you and hoping you get answers soon!
i wish it was all black & white… but i guess God has His ways…
i just got the same diagnosis (verbatim) on my SP please email me, i would love to further discuss your condition and what treatments youve done. I know MS or a diagnosis like MS differs from person to person but its nice to not feel alone stephh__2010@hotmail.com
Contains 5 well defined bands, high protein in CSF , high inG.66 everything else is normal. cervical lesion in neck and shoulder 7-8 cm long. 2 lesion on brain. could this be MS? what kind of carcinoma could this be?
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